Saturday, August 27, 2005

my son is coming home

my son is coming home

--------------------------------------------------------------------------------

hi all,

i just thought id give a quick update and tell you what is going on.

we had our meeting at the RTC around discharge plans and stuff.

there were a few things we asked for and they are all in agreement on trying to get the services we asked for.


we asked for respite in the home once a month...(you guys know how i feel having them leave us for respite..lol) they not only agreed, but said that we should make it every other week...and in time if we dont need it, then we can do it once a month

we asked for therapy in the home (the appts for these two boys, are overwhelming) and they agreed, they feel that seeing the boys together in the home, would actually prove to be more beneficial.

quick history, over the last few months we have the RTC staff come into our home and observe what we might need, they come for 3 hours and watch us parent and see where we might need some support, not only with the kids, but with our parenting style. (as you know, parenting these kids, is very different then 'normal' kids)

ok, now im going to brag....

i also asked about AT, that maybe we need it and they actually laughed at me..they said that our boys have attached to us, they took the RAD dx on our boys, off their DX papers.

the report said that we were doing AT work with them, and its clear that our hard work had paid off. both boys are attached to us

bragging again....

they also said that our family has been one of the best families they worked with due to our communication with each other and how we communicate with our kids, and all the patience that we have around their issues.

(tooting my own horn here)...

they said they were amazed on how consitant that we have been when choosing battles. they have said that they rarely see this.

the only thing they said we needed to work on was some behavior modification stuff (reward charts and such)..i do have to agree...i really have a hard time with handing out their stars.

anyway, though it seems that im tooting my own horn (which i am) it was really nice to hear...so im giving myself a pat on the back.

only because sometimes i think we have no idea on what we are doing....

my son will be transitioning home very slowly, we will alos be getting a bigger subsidy for my boys, so we can afford a more professional 'babysitter'...(they gave us some numbers on the staff at the RTC that worked great with my son) who are interested in making some extra money.

there are also looking to make sure the camp is part of the package in the summer so its all set up and paid for, so its not such a burden trying to find a camp that can handle our kids issues.

my younger son, who is doing ok, still goes into 'contol' mode when my older son comes for his sleepovers. Im hoping that this behavior will get better with time.

my youngers sons camp was successful, i didnt hear anything at all from them, and i am under the belief...no news is good news..........

so on the last day of his camp, i went to check on him, and he was in the barn playing bingo...so when i went in, he was in time out...

i spoke to the teacher outside and asked what happened, she said that all the kids are acting out a little since its the last day of camp.

she then said my younger son had no problems at all, and his behavior was one of the best...

she said, he like his outdoor sports and doesnt do well with bingo anyway (hes not bingo kid...lol)

anyway, i guess i just want to report on some good things for a change, and i want to thank each and every single one of you..even the ones that i had argued with, because i had some heck of an education being on these forums.

You guys really taught me how to parent these boys which i will always be grateful for and thats why i keep coming back, because im always learning,

and even though our dream of what our family what we thought was suppose to look like has died, you guys gave me the support and hope on what our family can be.

so i just want to thank you...i know we have a long road ahead of us...the RTC is convinced that my older son will be back, not due to us, but due to his issues.

but we are moving forward with this, and enjoying the time that we have together as a family until the day comes when he starts moving backwards, at least we know we have the supports in place.

so thanks guys, we couldnt of done this without you...i mean that.
__________________

No comments: