Monday, February 7, 2005

now i have heard everything.

ok, now i have heard everything

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my younger son, whos hair is getting real long...refusees to get his haircut...but he doesnt tell me why...(this is an odd issue, he usually likes to get his haircut...)

so i havnt pushed it, until the last couple of weeks....

finally, yesterday, i told him that i will be cutting it since he wont go to the barber, and im not that great at cutting hair and it might look funny....

then he said...

"but daddy, i need it to grow longer before i cut it, so i can give it to the kids who are sick who have no hair"....

now what do i do?...

Thursday, January 20, 2005

am i totally crazy, or jusgt a little?

am i totally crazy, or just a little?

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i talked to my older sons therapist today.

she said that he is doing real, the risperdol has helped him alot, and he has never needed to be restrained since he has been there.

they have not seen anything that what we reported, but they do believe us, because all the hospitals he has been also reported what we saw.

she talks about how in therapy that he feels real sad that he cant live with us and he really wants to.

he says that he gets angry that he gets angry and he knows thats why he cant live here.

he is worried that because of his anger that he will keep getting rejected.

then she discussed that everytime she talks to me, that i seem very ambivilant (sp?) about this disruption thing and why?

i explained to her that we really didnt want to disrupt but they were not willing to put him on the risperdol and we couldnt live the way we were living.

so the choice became 'disrupt with risperdol' or 'not disrupt, with no med changes'

so, we knew we couldnt do it, and DSS made the decision for us.

she said that DSS is willing to look at it again, and she talked to the workers over there.

she said that we are 'great' and she really wishes that he could come home, she understands the stress, because alot of her other kids have my sons outbursts......but with the risperdol, he doesnt seem to have these rages anymore

she said that they actually offer parenting classes on trauma kids that we can attend,

they said that we would definitly make sure he is stable before discharge,

they can offer respite there for either overnight or even just during the day, apparently they have two respite beds for past clients,

they also have a therapist that comes to the home for home therapy.

they also can supply as much help as needed.

they said we have staff here that are willing to do some extra work (wink wink, nodd nodd) 'babysit' because they know how to deal with these kids and their goal is to work with the family so they dont disrupt.

they realize that a regular 'babysitter' doesnt really stick around...(thats an understatment)

she has said on numerous occasions that she wishes our son came there first....and i do agree, they are working miracles with him and the place is very clean and have more professional staff

am i CRAZY!!!!!!!!!!!!!!!

I WANT HIM BACK!!!!!!!!!!!!!

my wife wants him back to, but of course she is more level headed and said, we need to really discuss this and really look at our options.

he has been doing great on our visits. since the risperdol, he doesnt go into his 'loops' (as we call them), he has gotten angry...but no hitting or major meltdowns....

what do you guys think? ARE WE CRAZY!!!!!!!!!!!

but he is my son...i cant see him any other way yet.

my younger son really wants him to come home, he threw a fit at our last visit, and after we dropped him off, on the way home he started kicking the seat and yelling "i want 'N' to come home...he is all better....i wANT HIM HOME....".....

Saturday, January 8, 2005

ok, I know, im needy this week.

ok..i know...im needy this week

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hi all,

want to ask anyone out there, if they are familiar with these new types of medications.

has anyone heard of a medication called amantadine....its given to parkinsons patience in their early stages of the disease.

they are finding that kids with 'explosive behaviors', that is calms them.

a woman i know who adopted a 6 yr old, who is now 16, this drug changed him.

he has had numerous hospitilazations and RTC until the last 6 months.....he loves the drug and reports that its the first time in his whole life he feels 'normal.'

has not had a meltdown since he has been on it....and has actually been calm when he didnt get what he watned....its doesnt sedate him or anything....

apparently it has to do with the dopamine in the brain....but im not to clear on it.

has anyone had any experience with this?

now my other question, this is more for my younger son....

has anyone used omega 3 fish oil...liquid....

a few other parents i have talked to (i talk to anyone who would listen...lol)....said that they put their child on this holistic fish oil and its the first time they see their child happy...but warned me if they gave her too much, then it wouldnt work.

apparently alot of doctors are trying this with kids with explosive behaviors also...again, im not really sure exactly what it does and what it is for.

another friend of mine told me that their whole family takes it....

has anyone heard of these new medications that they are trying?...

Friday, January 7, 2005

school issues

school issues

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well, i just got off the phone with my younger sons school and they are scheduling his IEP meeting for next wednesday.

the counselor gave me a heads up, and they are looking at sending my son to a different school....

i am so freaking pist...........i have been trying so hard to get my kids in some normal routine, but one thing after the other, over the last couple of years just wont happen...

i am so upset..not because of the special school, well, part, because the school he is in now, is around the corner and this school is downtown....and ihate driving downtown due to the traffic (yes i am whinning)

the reason we moved here, so we could have a neighborhood and he can get to know kids from his school and things like that....

this will just isolate him even more...because we wont know the kids in the area...

so here we go, another transition...oh, my son is in kindergartin.

his self estemm is shot as it is...and now i have to tell him that he has to go to another school across town no less....(he likes his new friends that he made at this school)

this is just me venting..i feel like giving ujp sometimes on trying to have my kids have some normal life, when i l know deep down that they could...but the powers to be just keep fighting it...

anyway ...just venting, tomorrow is another day, and the sun will shine, and i will just start all over again on trying to deal with this information...

then soon i will be starting all over again around structure...

heres a question..how many transitions can a child take before they totally give up?
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Wednesday, January 5, 2005

how would you feel?

how would you feel?

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hi all,

here is a question for children that were placed for adoption due to neglect and abuse, but were young and didnt remember their birthparents.

while you were young, your aparents told you that your birth family couldnt take care of you because of problems they were having in their life. (true)

your aparents never went into detail, but just left it like that, due to you were so young any way.

as you got older, you learned the truth about your history of abuse and neglect and your aparents told you, but waited...

here are my questions:

would you be mad at you aparents waiting so long to tell you the truth?

at what age would you of liked the whole truth?

and if your aparents never told you the truth, because the truth was so awful, but you found out on your own, would you be mad at them?

and, would you really want to know that information anyway?

Tuesday, December 14, 2004

yea!!!!!!!!

yea!!!!!

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hi all,

We had our meeting with our older sons group home and DSS, a service plan meeting.

Well, they all understand, they all agree with what we suggested,
and guess who is coming home on christmas?.....

we are so thrilled. even DSS (our enemy) agreed but wouuld like him to come for a visit first before the holiday and see if he regresses...which i understand and agree.

they will not increase our visits anymore...we get to see him once a week and our two phone calls a week....so ill live with that.

the group home really feels that his connection to us is really strong and that we will play an important part on his transition to a new family......

basically, like 'regular' kids, they learn to trust and feel safe by their parents to go out in the world which my son never experienced, so they are feeling like this could be an opportunity for him to feel safe with the transition to a new family

as for the new family...the group home was clear to DSS that he will need to have a family that could focus all their attention on him and that by placing him in a family that is 'clueless' will only set him up to fail again.

they all agree that he is not ready to be adopted at this point, and since we are all the family he has, we should remain and active in his case.

at the close of this meeting, the group home said "I wish he came to us the first time, he is such a great child and i think we could of helped him transition back to you...."

their goal is to try to get him off all his meds....not know, but soon.

the sad news is, they have been doing alot of tests with him and he was worse then we thought he was with the language processing issues.

they feel he doesnt understand much when he is spoken too. he just cant understand anything and he gets real frustrated...and tantrums out.

anyway, im feeling great....

he has not had to be restrained once...he has had mini tantrums, but not to the extent that we reported or the other grouphome or the hospital.....they feel the risperdol might be working

just wanted to let you know what was going on...i guess i didnt have to use my scare tactics (as i had rehearsed in my head over and over again of what i was going to say)

Friday, December 3, 2004

more issues

more issues

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as most know, my older son is now in a group home, he is not ready to be put up for adoption due to his issues.

he does have attachment issues, but has attached to us.

since he has been in the group home, they had limited our visits due to confusion that he might have.

well, they finally admitted yesterday that maybe this was not the best idea they had.

he is starting to act out, starting to smear his feces all over the walls, starting to urinate in the cornor of his room. (all RAD behaviors if you ask me)

he has never done anything like that before.

they said to be honest, they never had a family still want to be involved in a childs life after a disruption due to the guilt they feel.

i feel guilty, but i still want to be in the childs life. this is the first time they came across this.

he told his therapist that the only place in his whole life that he felt safe was with us and he doesnt want a new family and doesnt feel safe at the group home and he just wants to come home. he says he misses us.


i am so pist....we had this all planned out in the hospital...he was assured that we will still be there for him and we werent going anywhere no matter what....

but this new social worker comes along from the new DSS office, and decides in two hours at a meeting, whats best for him

well....it back fired....and my son has now payed a huge price for this. all the work we did, has just been wasted. how can he ever trust or attach again to anyone. why should he? everyone leaves...

i said, i understand why they feel he might be confused, but he is confused now...he goes to group home and we disappear...thats confusing to him also...no explanation, no nothing, just, were here, were gone.

yes, i can see if he came home for 'visits' that might be confusing too. but isnt it a better confusing.....at least he knows that soemone else hasnt abandoned him.

i rather him be confused on something positive then something negative.

i am so sick of people who do not know my son decide what is best...i have psych, his old dss office, and other professionals that have written letters, but they wont budge.

they are damaging my child and his actions are proving it.

now wonder why these kids get so messed up, they keep yanking them away without any reasons and blame us for it.

in order for people to have healthy attachments, they have to be giving a chance to have a heatlhy attachment. this is not a diffulcult concept.....

my son did this with us, he let us in, he trusted us (as much as he could) and we did alot of attachement stuff with him.....

to be only erased in a two hour discussion by this social worker.

i am so angry!!!!!!

we have a meeting on 12/14 and if they dont play by my rules (since they admit they never done this before) then i will pull out the guns. im tired of playing nice nice with these people, i have been dong it for a while. and if they give me crap, i will get a lawyer, my son has a write to see his brother.

now they are saying they are not putting him up for adoption just yet do to his new issues....well how the heck did he get these new issues?......i wonder...

so here we have a child, that has no family, is not up for getting a new family, but he has people that truly love him and want to help him and be there for him, but arent allowed to see or talk too that often because this will hurt him.

i must be missing something.

im pist, can you tell.......and i will fight like crazy to get him to have a visit with us on christmas.

sorry for venting....but this is what ive been dealing with the last few days.

when do the people who know him the best have a right to say what they feel will be good for him.